Living with Osteogenesis Imperfecta (OI), also known as Brittle Bone Disease, means navigating life with unique challenges. One of the more peculiar ones? The stare. Whether it’s my compact stature or the impressive presence of my 400-pound wheelchair, people tend to notice me.
While curiosity isn’t inherently bad, it’s the reactions that make things interesting. Kids are often the most fascinated—and I get it. They haven’t been taught how to approach someone who looks physically different. But when it comes to adults? That’s when things get frustrating.
Turning a Stare into a Smile
Instead of letting stares bother me, I’ve learned to lean into them. Sometimes, I stare right back, matching their intensity. The reactions are priceless—everything from nervous laughter to outright retreat, as if I were a rabid dog. Humor has become my shield, and honestly, it makes life a lot more fun.
As a disabled artist, I’ve found that breaking the ice through humor or conversation often helps others see me for who I am: a person with passions, talents, and a unique story.
Inclusion Starts Early
Recently, I had a heartwarming conversation with my childhood best friend. She shared something that stuck with me: “Katherine, we never thought of you as different. You were just Katherine.”
Growing up with Brittle Bone Disease in a mainstream classroom was pivotal for me—and for my classmates. Surrounded by 18 able-bodied peers, I felt relatively “normal.” This environment helped me cultivate confidence, and in turn, taught my classmates how to interact naturally with someone who has a disability.
Their openness shaped their understanding of inclusion, acceptance, and tolerance—skills that are invaluable in today’s world.
Why Inclusion Matters
As someone living with a disability, I’m a firm believer in the power of inclusion. Integrating kids with disabilities into mainstream classrooms benefits everyone. It allows children to grow up understanding that physical differences are just that—differences, not barriers.
In New Orleans, where striking up a conversation is as common as jazz on a street corner, the idea of inclusion feels natural. Whether it’s chatting in the grocery store or at a gas station, connection is what brings people together. Teaching kids to engage with their peers who are different helps foster this connection early on, building a more accepting and empathetic world.
Motivation Through Art and Disability
As a disabled artist, my experiences have profoundly influenced my art and the way I see the world. Living with Osteogenesis Imperfecta has taught me resilience, creativity, and the importance of sharing my story. Through my art, I hope to inspire others to see beyond physical differences and embrace the beauty of diversity.
Motivation doesn’t come from wishing away challenges; it comes from facing them head-on and using them to fuel your passions. For me, that’s creating art, connecting with others, and advocating for inclusion and acceptance.
A Call to Action: Don’t Stare!
If you encounter someone who looks different, don’t stare. Instead, say hello. Strike up a conversation. You’ll find that we’re not so different after all. And if you’re a parent, teach your kids to do the same. Encouraging curiosity through kindness and respect is the first step toward creating a world that celebrates diversity.
Together, we can build a society where inclusion is the norm, not the exception—where everyone, regardless of ability, is seen and valued for who they truly are.
What are your thoughts on inclusion and disability awareness? Share your experiences in the comments below—I’d love to hear from you!