Living with Osteogenesis Imperfecta often means that simple tasks, like buying a new car, become monumental undertakings. As a disabled artist who relies on a wheelchair for mobility, I faced unique challenges in finding an accessible van that could meet my needs. After years of driving my trusty Toyota Sienna, it was time to upgrade to a van […]
Living with Osteogenesis Imperfecta (OI) means constantly adapting to everyday activities that others might take for granted. As a disabled artist and advocate for art and disability, I’ve learned to find creative solutions for challenges posed by my condition. Today, I want to share how I navigate long car rides safely and comfortably—a process that’s both unconventional and deeply personal. […]
As a New Orleans artist with Osteogenesis Imperfecta (OI)—commonly called Brittle Bone Disease—my relationship with the French Quarter is a complicated one. On one hand, it’s an iconic part of the city, bursting with life, art, and music. On the other, the lack of accessibility poses significant challenges for someone with a disability. The Allure of the French Quarter […]
Anyone who knows me will tell you that my idea of a perfect evening involves music, a live concert, and getting as close to the stage as possible. Even though I’m a disabled artist living with Osteogenesis Imperfecta (OI)—often referred to as Brittle Bone Disease—music has always been my escape, my happy place. And let’s face it, painting (though I love it) […]
When I share that I have Osteogenesis Imperfecta (OI), often called Brittle Bone Disease, people are surprised to learn I attended mainstream schools my entire life. As a disabled artist who thrived in these environments, I’ve seen firsthand how school inclusion benefits not just the student with a disability, but the entire community. Early Challenges and the Search for Inclusion By […]
When you think of summer vacation, the beach likely springs to mind—sun, surf, and sand appeal to most people. Families build sandcastles, dogs romp in the waves, and adults lounge under umbrellas with a cold drink. It’s a near-perfect getaway for many—but not for me! As a disabled artist living with Osteogenesis Imperfecta (also known as Brittle Bone Disease), I face unique […]
As a disabled artist living with Osteogenesis Imperfecta (OI)—also known as Brittle Bone Disease—I’ve encountered my fair share of awkward interactions. While most people mean well, some just don’t know how to act around a wheelchair user. Over the years, I’ve collected a handful of helpful etiquette tips that can make everyday encounters more respectful, comfortable, and enlightening for […]
Living with a visible disability often means navigating more than just physical challenges—it means dealing with the unsolicited opinions, questions, and downright bizarre comments of strangers. As someone who uses a wheelchair due to Osteogenesis Imperfecta, I’ve heard my fair share of awkward, offensive, and unintentionally hilarious remarks in public. Sometimes, these interactions are a […]
