Motivation in the Face of Chronic Disease

One of the most common questions I get asked as a disabled artist living with Osteogenesis Imperfecta (OI)—also known as brittle bone disease—is, “How do you manage to find motivation when your life is full of physical pain and challenges?” The truth is, there are several reasons why I maintain a positive attitude despite the daily struggles that come with […]

Breaking Stereotypes and Eating Chicken Wings

Living with Osteogenesis Imperfecta—also known as Brittle Bone Disease—means doing everyday tasks in ways that might seem unusual to others. One of the most common concerns people express about me is the way I eat: lying down on my side. Yet, after nearly 29 years of eating this way without incident, I’d say my track record speaks […]

Adapting Painting to Osteogenesis Imperfecta

As a watercolor artist with Osteogenesis Imperfecta (OI), also known as Brittle Bone Disease, my approach to art is as much about creativity as it is about adaptation. Living with chronic pain and physical limitations means I’ve had to develop unique methods to pursue my passion for painting—especially my watercolor animal art, which is inspired by my love for animals. […]

“Hashing It Out” with Jane Activist With Osteogenesis Imperfecta

Today on Looking Up, I’d like to introduce you to a TRUE entrepreneur, Jane Hash, who just so happens to have Osteogenesis Imperfecta Type III like me. An activist, business owner, volunteer, podcaster, nutritionist, and blogger herself, Jane has truly done it all. Let’s get started! Hey Jane! First, I want to start off with […]

15 Dumb Things Strangers Have Actually Said to Me

Living with a visible disability often means navigating more than just physical challenges—it means dealing with the unsolicited opinions, questions, and downright bizarre comments of strangers. As someone who uses a wheelchair due to Osteogenesis Imperfecta, I’ve heard my fair share of awkward, offensive, and unintentionally hilarious remarks in public. Sometimes, these interactions are a […]