Living with Osteogenesis Imperfecta (OI), commonly referred to as Brittle Bone Disease, means constantly navigating physical limitations, chronic pain, and the need to rely on others for everyday tasks. As a disabled artist, I’ve come to realize that art and dependence intersect in countless ways—some more challenging than others. Whether you’ve lived with a disability all your life or suddenly find […]
Today on Looking Up, I’d like to introduce you to a TRUE entrepreneur, Jane Hash, who just so happens to have Osteogenesis Imperfecta Type III like me. An activist, business owner, volunteer, podcaster, nutritionist, and blogger herself, Jane has truly done it all. Let’s get started! Hey Jane! First, I want to start off with […]
As an artist living with Osteogenesis Imperfecta (often called Brittle Bone Disease), people often suggest I could make a fortune if I focused on painting full-time. While I’m deeply passionate about art, the reality is more complex—and it’s shaped by both my disability and my personal preferences. 1. The Myth of the “Starving Artist” Many believe a full-time painter can easily make a […]
When you live with Osteogenesis Imperfecta finding activities that fuel creativity and keep boredom at bay can be life-changing. I’ve always gravitated toward any outlet that allows me to express myself and nurture my love for animals. I want to show the world that my disability doesn’t define my limits. From a young age, art became my passion. Over time, […]
As a disabled artist with Osteogenesis Imperfecta—often referred to as Brittle Bone Disease—I know what it’s like to juggle love for music with the realities of my disability. It’s not unusual for me to break a rib or collarbone simply from coughing or sneezing. But when you’re a die-hard music lover, sometimes you push the limits for concerts—especially if it involves seeing Florida Georgia […]
Living with a visible disability often means navigating more than just physical challenges—it means dealing with the unsolicited opinions, questions, and downright bizarre comments of strangers. As someone who uses a wheelchair due to Osteogenesis Imperfecta, I’ve heard my fair share of awkward, offensive, and unintentionally hilarious remarks in public. Sometimes, these interactions are a […]
What does it mean to look up—both literally and figuratively? For me, it’s a question rooted in my experience living with Osteogenesis Imperfecta (OI), commonly called Brittle Bone Disease. As a disabled artist with a passion for art and a life shaped by my disability, I’ve learned that a positive perspective can transform challenges into opportunities. This mindset took shape in a project […]
Osteogenesis Imperfecta (OI)—often called Brittle Bone Disease—affects roughly one in 15,000 people. This genetic disorder causes bones to fracture easily and develop abnormally due to a collagen deficiency. It affects everything from bone strength to hair and nail growth. Beyond frequent fractures, many with OI also manage disability-related complications such as weak ligaments, hearing loss, and respiratory […]
