The Comfort of Lying on Tables

As most of you know, I spend a lot of my time lying down. It’s easier for me to function in that position because my back and neck get tired quickly in my chair, and when I’m lying on my side I feel like I’m not having to fight gravity as much. It can be […]

“Looking Up” Excerpt: Caged? Child Abuse?

Parents of children with Osteogenesis Imperfecta are often charged with child abuse, simply because their kids always turn up with broken bones. My muscles can break my bones when they contract, making it seem like my bones break at random. You can see where, especially if a child has a lower severity of OI, parents […]

Osteogenesis Imperfecta 101

Osteogenesis Imperfecta affects approximately one out of 15,000 people. In a nutshell, it’s a genetic bone disorder that causes bones to break easily and grow abnormally due to a lack of collagen (the stuff that helps make up your bones, organs, hair, and fingernails). It also causes weak ligaments, hearing loss, breathing problems, and dental […]