As a disabled artist with Osteogenesis Imperfecta—often referred to as Brittle Bone Disease—I know what it’s like to juggle love for music with the realities of my disability. It’s not unusual for me to break a rib or collarbone simply from coughing or sneezing. But when you’re a die-hard music lover, sometimes you push the limits for concerts—especially if it involves seeing Florida Georgia […]
What does it mean to look up—both literally and figuratively? For me, it’s a question rooted in my experience living with Osteogenesis Imperfecta (OI), commonly called Brittle Bone Disease. As a disabled artist with a passion for art and a life shaped by my disability, I’ve learned that a positive perspective can transform challenges into opportunities. This mindset took shape in a project […]
As someone living with Osteogenesis Imperfecta (often called Brittle Bone Disease), I rely on a wheelchair for mobility and have firsthand experience with the realities of being disabled. So, when I received free tickets to an America’s Got Talent taping, I was excited for a fun afternoon break. Little did I know I’d encounter someone who’d completely exploit disability accommodations—my new […]
Osteogenesis Imperfecta (OI)—often called Brittle Bone Disease—affects roughly one in 15,000 people. This genetic disorder causes bones to fracture easily and develop abnormally due to a collagen deficiency. It affects everything from bone strength to hair and nail growth. Beyond frequent fractures, many with OI also manage disability-related complications such as weak ligaments, hearing loss, and respiratory […]
