Living with Osteogenesis Imperfecta (OI), often referred to as Brittle Bone Disease, means navigating life with unique challenges. As a disabled artist and advocate, I’ve encountered countless misconceptions about living with a wheelchair. People’s comments often fall into two extremes: misplaced pity or misplaced envy. Let’s address both and shed some light on the realities of living with art and disability. […]
Living with Osteogenesis Imperfecta (OI), commonly known as Brittle Bone Disease, comes with a unique set of challenges, and sometimes specialized therapies like Craniosacral Therapy is needed. For those of us with this rare condition, maintaining mobility and managing pain are top priorities. Despite the risks of bone fractures, physical therapy and regular exercise can play a critical […]
Some believe in destiny and some believe in fate, but I believe that happiness is something we create. Something More, Sugarland In 2009, I convinced my aunt to join me at Jazz Fest to see a rising country duo called Sugarland. They had a few hits on the radio, and I thought their music was good […]
As a Louisiana artist living with Osteogenesis Imperfecta (OI), or Brittle Bone Disease, I’ve often reflected on a question I see frequently in chronic illness and disability communities: “Does your disability define you?” At first glance, it seems simple, but the more you unpack it, the more nuanced it becomes—especially when living with a condition that profoundly shapes your daily life. The […]
Be courageous and be brave, and in my heart, you’ll always remain forever young. Sir Rod Stewart As a disabled artist and graphic designer motivated to break barriers, I’ve had some incredible moments in life, but nothing compares to meeting Rod Stewart. From an unexpected invitation backstage to nearly designing his album cover, this experience has been a whirlwind […]
As a disabled artist living with Osteogenesis Imperfecta (brittle bone disease), my daily life often looks different from what most people expect. For me, lying flat on hard surfaces—like my kitchen table or counter—is not only functional but also essential for my comfort and productivity. This unconventional choice surprises many, but it’s what allows me to paint, type, and […]
Living with Osteogenesis Imperfecta (OI), or brittle bone disease, means navigating unique challenges daily. As a disabled artist and watercolor enthusiast, my health directly impacts my ability to create art and live a fulfilling life. Dieting, exercise, and self-care play a crucial role in maintaining my physical well-being, but let’s be honest—dieting is no fun! The Struggle is Real: […]
For those who don’t know, music is a cornerstone of my life. As someone living with Osteogenesis Imperfecta (OI), also known as brittle bone disease, finding motivation and inspiration is essential. For me, music provides both. Few things compare to the excitement of attending concerts and connecting with the songs that make life’s challenges a little easier to […]
Let’s talk about fashion and functionality—a real challenge for many of us with Osteogenesis Imperfecta (OI), also known as brittle bone disease. As a disabled artist, my body has unique proportions and limitations, which means finding clothing that fits, feels comfortable, and reflects my personal style can be a daunting task. While many of us living with bone disease know the […]
Living with Osteogenesis Imperfecta (OI), or brittle bone disease, means embracing creativity not just in my art but in how I share it with the world. As a disabled artist specializing in watercolor animal art, I strive to create opportunities to connect with others and showcase my work in ways that reflect both my passion and adaptability. Several years ago, I […]
