Some of the best advice I’ve ever received is simple: “You gotta use what you got, kid.” This wisdom has been crucial in my journey as a disabled artist living with Osteogenesis Imperfecta (OI)—a chronic disease that impacts my life every day, yet also shapes my art and my approach to life. Sometimes it’s a challenge to find motivation. […]
One of the most common questions I get asked as a disabled artist living with Osteogenesis Imperfecta (OI)—also known as brittle bone disease—is, “How do you manage to find motivation when your life is full of physical pain and challenges?” The truth is, there are several reasons why I maintain a positive attitude despite the daily struggles that come with […]
One of the most common treatments for individuals with Osteogenesis Imperfecta (OI), also known as brittle bone disease, is rodding surgery. This procedure involves inserting metal rods into the long bones to strengthen them and reduce the frequency of fractures. For those living with OI, a major challenge is that their bones develop abnormally. This results in bowed limbs […]
As a watercolor artist and a disabled artist, one of my most beloved ways of sharing my art is through intimate at-home events, known as KAK ART Parties. These gatherings began about ten years ago at my grandparents’ home in New Iberia, where I showcased my work to a small group of close friends. The event was such a […]
Living with Osteogenesis Imperfecta (OI) means facing unique challenges daily, like finding appropriate clothes. As a disabled artist, I often draw motivation from the vibrant community of individuals who share similar experiences. One such connection led me to a remarkable woman, Jane Hash. Her advocacy work and innovative initiatives continue to inspire me and others navigating life with OI. […]
Living with Osteogenesis Imperfecta (OI), often referred to as Brittle Bone Disease, means navigating life with unique challenges. As a disabled artist and advocate, I’ve encountered countless misconceptions about living with a wheelchair. People’s comments often fall into two extremes: misplaced pity or misplaced envy. Let’s address both and shed some light on the realities of living with art and disability. […]
Living with Osteogenesis Imperfecta (OI), commonly known as Brittle Bone Disease, comes with a unique set of challenges, and sometimes specialized therapies like Craniosacral Therapy is needed. For those of us with this rare condition, maintaining mobility and managing pain are top priorities. Despite the risks of bone fractures, physical therapy and regular exercise can play a critical […]
Some believe in destiny and some believe in fate, but I believe that happiness is something we create. Something More, Sugarland In 2009, I convinced my aunt to join me at Jazz Fest to see a rising country duo called Sugarland. They had a few hits on the radio, and I thought their music was good […]
As a Louisiana artist living with Osteogenesis Imperfecta (OI), or Brittle Bone Disease, I’ve often reflected on a question I see frequently in chronic illness and disability communities: “Does your disability define you?” At first glance, it seems simple, but the more you unpack it, the more nuanced it becomes—especially when living with a condition that profoundly shapes your daily life. The […]
Be courageous and be brave, and in my heart, you’ll always remain forever young. Sir Rod Stewart As a disabled artist and graphic designer motivated to break barriers, I’ve had some incredible moments in life, but nothing compares to meeting Rod Stewart. From an unexpected invitation backstage to nearly designing his album cover, this experience has been a whirlwind […]
