I’m thrilled to announce my partnership with the Humane Society of Louisiana, an organization dedicated to fighting animal cruelty, neglect, and mistreatment across the state. This collaboration allows me to merge my love for animals with my passion for art, creating a unique opportunity to give back. How the Partnership Works Through this partnership, donors to […]
As a music lover and disabled artist, concerts hold a special place in my heart. They’re a chance to break away from the daily grind, live in the moment, and immerse myself in something uplifting. Over the years, one band has stood out among the rest: Florida Georgia Line. Tyler Hubbard and Brian Kelley have not only delivered unforgettable […]
Living with Osteogenesis Imperfecta (commonly known as Brittle Bone Disease) has shaped many aspects of my life, including my love for art, music, and unique experiences. As a disabled artist, I’ve always found joy and motivation in connecting with others, whether through my artwork or my passion for music. Over the past several years, I’ve had the incredible opportunity […]
As a disabled artist living with Osteogenesis Imperfecta (OI), also known as Brittle Bone Disease, I’ve learned to adapt to the challenges that come with living in a body that feels every shift in the weather. Days like today in New Orleans—75 degrees, full sun, and a refreshing breeze—are bittersweet. While I enjoy the cooler air and the vibrant energy […]
As a disabled artist living with Osteogenesis Imperfecta (OI), also known as Brittle Bone Disease, traveling can be both an adventure and a challenge. My recent trip to Maine was a mix of breathtaking scenery and the inevitable complications that come with flying with a wheelchair. Planning the Trip: A Dream Destination When the opportunity arose to plan a […]
As a disabled artist living with Osteogenesis Imperfecta (OI), also known as Brittle Bone Disease, art has always been my outlet for self-expression and motivation. While many know me as a painter, I’ve also found immense joy and fulfillment in crafting handmade jewelry—a creative journey that began when I was just fourteen. The Beginning of a Lifelong Hobby My introduction […]
Being sick just sucks, right? As someone living with Osteogenesis Imperfecta (OI)—commonly known as Brittle Bone Disease—even a seemingly minor cold can become a significant health challenge. For me, illnesses like colds or the flu often turn into a battle for my health, especially when they threaten my compromised respiratory system. How Colds Escalate with Osteogenesis Imperfecta […]
As a New Orleans artist with Osteogenesis Imperfecta (OI)—commonly called Brittle Bone Disease—my relationship with the French Quarter is a complicated one. On one hand, it’s an iconic part of the city, bursting with life, art, and music. On the other, the lack of accessibility poses significant challenges for someone with a disability. The Allure of the French Quarter […]
Parents of children with Osteogenesis Imperfecta are often charged with child abuse, simply because their kids always turn up with broken bones. My muscles can break my bones when they contract, making it seem like my bones break at random. You can see where, especially if a child has a lower severity of OI, parents […]
Living with Osteogenesis Imperfecta (OI)—also known as Brittle Bone Disease—comes with unique challenges, particularly for those of us with short limbs, limited mobility, and fragile bones. Over time, adaptive technologies have made navigating these challenges more manageable. Here are ten game-changing gadgets that have made a difference for me and others in the disabled community. 1. Electric Wheelchairs […]
