Living with Osteogenesis Imperfecta (OI) means facing unique challenges daily, like finding appropriate clothes. As a disabled artist, I often draw motivation from the vibrant community of individuals who share similar experiences. One such connection led me to a remarkable woman, Jane Hash. Her advocacy work and innovative initiatives continue to inspire me and others navigating life with OI. […]
Living with Osteogenesis Imperfecta (OI), often referred to as Brittle Bone Disease, means navigating life with unique challenges. As a disabled artist and advocate, I’ve encountered countless misconceptions about living with a wheelchair. People’s comments often fall into two extremes: misplaced pity or misplaced envy. Let’s address both and shed some light on the realities of living with art and disability. […]
Living with Osteogenesis Imperfecta (OI), commonly known as Brittle Bone Disease, comes with a unique set of challenges, and sometimes specialized therapies like Craniosacral Therapy is needed. For those of us with this rare condition, maintaining mobility and managing pain are top priorities. Despite the risks of bone fractures, physical therapy and regular exercise can play a critical […]
As a Louisiana artist living with Osteogenesis Imperfecta (OI), or Brittle Bone Disease, I’ve often reflected on a question I see frequently in chronic illness and disability communities: “Does your disability define you?” At first glance, it seems simple, but the more you unpack it, the more nuanced it becomes—especially when living with a condition that profoundly shapes your daily life. The […]
Be courageous and be brave, and in my heart, you’ll always remain forever young. Sir Rod Stewart As a disabled artist and graphic designer motivated to break barriers, I’ve had some incredible moments in life, but nothing compares to meeting Rod Stewart. From an unexpected invitation backstage to nearly designing his album cover, this experience has been a whirlwind […]
As a disabled artist living with Osteogenesis Imperfecta (commonly known as brittle bone disease), my art room needs to be more than just functional—it must also inspire creativity and accommodate my specific needs. My journey as a watercolor artist in New Orleans has taught me the importance of organization, especially when creating watercolor animal art that reflects my passion for painting. Why Organization Matters for Art […]
Living with Osteogenesis Imperfecta, or brittle bone disease, presents unique challenges when it comes to exercise. For me, as a disabled artist, maintaining mobility and staying healthy are crucial, not only for my physical well-being but also for keeping my creative energy alive. Traditional exercise isn’t an option—my muscles are often stronger than my bones, and overexertion can […]
As a disabled artist living with Osteogenesis Imperfecta (brittle bone disease), my daily life often looks different from what most people expect. For me, lying flat on hard surfaces—like my kitchen table or counter—is not only functional but also essential for my comfort and productivity. This unconventional choice surprises many, but it’s what allows me to paint, type, and […]
Living with Osteogenesis Imperfecta (brittle bone disease) comes with unique challenges, one of which is finding a reliable aide to assist with daily tasks and support my creative endeavors as a watercolor artist. While you might assume that finding help would be easy, the reality is far more complex. What It Takes to Be an Aide for a […]
Living with Osteogenesis Imperfecta (OI), or brittle bone disease, means navigating unique challenges daily. As a disabled artist and watercolor enthusiast, my health directly impacts my ability to create art and live a fulfilling life. Dieting, exercise, and self-care play a crucial role in maintaining my physical well-being, but let’s be honest—dieting is no fun! The Struggle is Real: […]
