Living with Osteogenesis Imperfecta (OI) means facing unique challenges daily, like finding appropriate clothes. As a disabled artist, I often draw motivation from the vibrant community of individuals who share similar experiences. One such connection led me to a remarkable woman, Jane Hash. Her advocacy work and innovative initiatives continue to inspire me and others navigating life with OI. […]
Let’s talk about fashion and functionality—a real challenge for many of us with Osteogenesis Imperfecta (OI), also known as brittle bone disease. As a disabled artist, my body has unique proportions and limitations, which means finding clothing that fits, feels comfortable, and reflects my personal style can be a daunting task. While many of us living with bone disease know the […]
Living with Osteogenesis Imperfecta (OI)—also known as Brittle Bone Disease—comes with unique challenges, particularly for those of us with short limbs, limited mobility, and fragile bones. Over time, adaptive technologies have made navigating these challenges more manageable. Here are ten game-changing gadgets that have made a difference for me and others in the disabled community. 1. Electric Wheelchairs […]
Anyone who knows me will tell you that my idea of a perfect evening involves music, a live concert, and getting as close to the stage as possible. Even though I’m a disabled artist living with Osteogenesis Imperfecta (OI)—often referred to as Brittle Bone Disease—music has always been my escape, my happy place. And let’s face it, painting (though I love it) […]
When I share that I have Osteogenesis Imperfecta (OI), often called Brittle Bone Disease, people are surprised to learn I attended mainstream schools my entire life. As a disabled artist who thrived in these environments, I’ve seen firsthand how school inclusion benefits not just the student with a disability, but the entire community. Early Challenges and the Search for Inclusion By […]
As a disabled artist living with Osteogenesis Imperfecta (OI)—also known as Brittle Bone Disease—I’ve encountered my fair share of awkward interactions. While most people mean well, some just don’t know how to act around a wheelchair user. Over the years, I’ve collected a handful of helpful etiquette tips that can make everyday encounters more respectful, comfortable, and enlightening for […]
