Living with Osteogenesis Imperfecta (OI) means constantly adapting to everyday activities that others might take for granted. As a disabled artist and advocate for art and disability, I’ve learned to find creative solutions for challenges posed by my condition. Today, I want to share how I navigate long car rides safely and comfortably—a process that’s both unconventional and deeply personal.
Why I Ride on the Floor of My Car
For those unfamiliar with OI, the bones are exceptionally fragile, and even minor jostling can result in fractures. Traditional seating with seatbelts is not only uncomfortable for someone with severe scoliosis and brittle bones, but it’s also dangerous. In my experience, the pressure from a seatbelt during sudden stops or bumps often leads to broken bones.
To avoid these risks, I’ve adopted an unconventional method of riding: lying on a cushioned mat on the floor behind the driver’s seat. This position reduces strain on my back and minimizes the impact of bumps or sudden stops, as my weight is evenly distributed. It’s not standard, but it works for me—and it’s been a lifesaver during long road trips.
Addressing Safety Concerns in the Car
One of the most common reactions I get is, “But what if there’s an accident? You’re not buckled in—you’ll die!” Here’s the reality: for someone with OI, seatbelts can do more harm than good. If the impact is severe enough to involve the seatbelt, my injuries could be catastrophic regardless of whether I’m restrained.
To stay within legal guidelines, I always carry a letter from my doctor explaining that due to my disability, traditional restraints are unsafe. This document is crucial in case of traffic stops or emergencies, like when I once had to ride on my driver’s lap in a tow truck (yes, that happened).
The Challenge of Boredom
While lying on the floor is safer and more comfortable, it does come with its downsides—primarily, a lack of visibility. Looking up at nothing but the sky, streetlights, and treetops for hours can get monotonous.
Enter the solution: a custom camera system designed by students in the Bio-Mechanical Engineering Department at Tulane University. As part of their senior project, a team created a prototype featuring three cameras—mounted on the front windshield and side windows—linked to monitors on the floor of the car. This innovative setup allowed me to enjoy the view and significantly improved my sense of direction.
Upgrading the Camera System
While the original system worked well, it was built on a tight budget and had some limitations. Thanks to a tech-savvy friend, I’ve since upgraded to a more streamlined version. My new setup includes better cameras, a single monitor, and cleaner wiring, making my car rides both functional and enjoyable.
Embracing Adaptation
As someone living with bone disease and severe physical challenges, finding adaptive solutions is not just about comfort—it’s about independence and quality of life. My car setup is a small but significant example of how creativity and collaboration can overcome the limitations of disability.
If you’re navigating similar challenges, remember that there’s always a way to adapt. Whether through innovative technology, supportive communities, or personal motivation, you can find solutions that work for your unique needs.