Living with Osteogenesis Imperfecta often means that simple tasks, like buying a new car, become monumental undertakings. As a disabled artist who relies on a wheelchair for mobility, I faced unique challenges in finding an accessible van that could meet my needs. After years of driving my trusty Toyota Sienna, it was time to upgrade to a van that would better support my lifestyle and art career.
The Challenges of Transition
For me, getting a new van is more than just a purchase—it’s a process. My wheelchair lift is a Bruno system that makes it easy for anyone to load and unload my 400-pound wheelchair. Naturally, it needed to be compatible with the new vehicle. Since only a handful of vans can accommodate this type of lift, my options were limited. While I’d loved my Toyota, I ultimately chose the Chrysler Pacifica. It has Stow-N-Go seats which fold into the floor and make packing for art shows a breeze.
As a watercolor artist, my art shows require transporting a substantial amount of supplies, including artwork, display materials, and personal items. The Pacifica’s versatile storage, combined with great gas mileage and a smooth ride, made it the clear choice.
Complications with an Accessible Van
After finding a 2017 Chrysler Pacifica demo model that ticked all my boxes, the next step was transferring my wheelchair lift to the new van. This process, which I was assured would be straightforward, turned out to be anything but. The back hatch of the Pacifica was smaller than my Toyota’s, making it difficult to load and unload my wheelchair.
On the first attempt, the mobility service company installed the lift incorrectly. After several heated phone calls, trips to the service center, and ten days of not being able to use my brand-new van, the lift was finally adjusted to work—albeit tightly.
A Community of Support
Thankfully, I had help from a family friend who made additional modifications to ensure my wheelchair fit properly. He also reinstalled my camera system and fine-tuned other adjustments that the dealership and service company had been unable—or unwilling—to address. It’s moments like these that remind me how much I rely on my community to navigate the unique challenges of living with bone disease.
Overcoming Obstacles Getting an Accessible Van
Despite the frustrations, the end result has been worth it. My new van has transformed my daily life and art career. This Pacifica allows me to focus less on logistical struggles and more on creating watercolor art.
Breaking in the van with a road trip to see Sugarland in concert was a special milestone. For the first time in years, I was able to travel comfortably, marking the beginning of a new chapter of independence and inspiration.
Lessons Learned
This experience taught me that accessibility often requires willingness to advocate for your needs. As a disabled artist, my work is fueled by overcoming challenges like these. It’s a reminder of the resilience and determination it takes to live a fulfilling life with Osteogenesis Imperfecta.
If you’re in the market for a wheelchair-accessible vehicle, I can’t recommend the Chrysler Pacifica enough. Just be prepared for the unexpected—it’s all part of the journey when you live with a disability.
