Living with Osteogenesis Imperfecta—also known as Brittle Bone Disease—means doing everyday tasks in ways that might seem unusual to others. One of the most common concerns people express about me is the way I eat: lying down on my side. Yet, after nearly 29 years of eating this way without incident, I’d say my track record speaks for itself. It’s important to show people different perspectives and break common stereotypes they may believe.
Stereotypes and Humor
I’ll admit, there was that one time I choked on a carrot, but the circumstances were hardly typical. I was sitting up at the table, laughing hysterically at my cousin’s antics, and inhaled mid-chew. Let’s just say it wasn’t my finest moment, and my aunt promptly banned me from carrots for the rest of that trip.
This kind of misunderstanding isn’t uncommon when you live with a visible disability. People unfamiliar with my lifestyle often react in surprising—or downright funny—ways. For instance, I shared one particularly bizarre encounter in my book, Looking Up.
A Wing Moment to Remember
Picture this: My friend and I are at WOW Wingery, enjoying a meal before heading to a movie. Because of my physical needs, I lie on the table to eat—it’s just easier that way. Out of nowhere, an older woman exclaimed loud enough for the entire mall to hear, “Oh my goodness! She’s eating the chicken wings by herself!”
What do you even say to that? My friend nearly choked on her own wing, and all I could muster was a stunned “Umm…yes?” I have no idea what was going through that lady’s head. Did she think I was a baby eating chicken wings? The absurdity of the situation left us both in stitches.
Finding Motivation Through Humor and Stereotypes
Moments like these remind me that humor is a powerful tool. Living with Osteogenesis Imperfecta and navigating life as a disabled artist, I’ve learned to embrace the curious reactions and odd assumptions that come my way. They’re part of my journey as someone who thrives at the intersection of art and disability, turning challenges into opportunities to educate and inspire.
Get Looking Up
Want to read more about my experiences with Brittle Bone Disease, my life as a disabled artist, and how I find motivation in unexpected places? My book, Looking Up, is available on Etsy for just $10! Dive into stories that are equal parts hilarious and heartfelt, and discover how I’ve adapted and thrived despite life’s quirks.