Living with Osteogenesis Imperfecta (OI), or brittle bone disease, means navigating a world where broken bones are frequent and pain is a constant companion. By the time I was ten, I had experienced over 500 fractures. Despite that staggering number, I’ve managed to avoid regular use of narcotics—a choice rooted in my desire for long-term health and a sense of control over my body.
While OI presents unique challenges, my approach to pain management has been shaped by natural remedies, alternative therapies, and an understanding of what works for my body. Here’s an in-depth look at the strategies that help me manage the pain associated with brittle bone disease.
Natural Remedies for Pain Relief
Homeopathic Remedies
My go-to options include Arnica, Hypericum, and Bellis, each chosen based on the type of pain or injury I’m dealing with. These remedies, available at most health food stores, have been invaluable for managing acute pain after fractures or dislocations.
Arnica Gel
For swelling and bruising, nothing beats Arnica Gel. This topical remedy reduces inflammation and provides temporary pain relief. It’s a staple in my daily routine and easily accessible at major pharmacies like Walgreens and CVS.
Bone Restore Supplement
With OI, calcium absorption is a challenge. Yet, Bone Restore, a calcium and magnesium supplement, has proven to be a game-changer. It significantly reduces my healing time after fractures. Though it’s tough on my stomach, the benefits far outweigh the drawbacks.
Ibuprofen and Excedrin
For moments when natural remedies aren’t enough, I turn to small doses of over-the-counter medications like Ibuprofen and Excedrin. I carefully manage the dosage to minimize potential side effects, always prioritizing my overall health.
Therapies That Keep Me Moving
Craniosacral Therapy
A specialized form of physical therapy, Craniosacral Therapy works to align my body’s rhythms physically, mentally, and energetically. My practitioner, Myra, has been a lifeline in managing both chronic and acute pain.
Massage Therapy
Massage therapy has been integral in my pain management routine. My therapist, Carlene, provides targeted treatments that calm muscle spasms and support healing after injuries.
Hot Packs and Biomats
Heat therapy is crucial for managing muscle spasms around fractures. My homemade bean bag hot packs and the high-tech Biomat (a heating pad with amethyst crystals) offer consistent relief.
The Power of Movement
Swimming
Swimming is my favorite form of exercise and therapy. The buoyancy of water reduces strain on my bones, allowing me to stretch, walk, and move without fear of injury. Regular swimming sessions significantly decrease my chronic pain levels and boost my overall well-being.
Finding What Works for You
Pain management for art and disability is deeply personal. For me, natural solutions and alternative therapies offer relief while enabling me to stay in control. They’ve allowed me to focus on my passion as a disabled artist, creating art that inspires others while managing the challenges of living with OI.
Everyone’s journey with pain is unique, and what works for one person may not work for another. My approach emphasizes trying new solutions, listening to my body, and staying open to evolving methods. For anyone living with brittle bone disease or a similar condition, I hope this insight into my routine provides inspiration and encouragement to find your path to relief.