Anyone who knows me will tell you that my idea of a perfect evening involves music, a live concert, and getting as close to the stage as possible. Even though I’m a disabled artist living with Osteogenesis Imperfecta (OI)—often referred to as Brittle Bone Disease—music has always been my escape, my happy place. And let’s face it, painting (though I love it) usually feels more like work these days! There’s just something about the energy of live shows, especially country music concerts, that lights up my world.
Why the Next Concert Means So Much
As someone with a chronic condition like OI, daily life can be challenging. The pain, the logistics of art and disability, and the limitations of mobility can be frustrating. But for a few hours at a concert, it all fades away. I get to sing along to my favorite songs—loudly—and forget about everything else. Afterward, I might be sore, but it’s totally worth it.
Music connects me to people who share my passion. I’ve formed lasting friendships and even met my closest friend at a concert. We bond over the artists we love and the crazy experiences we have chasing front-row seats. Concerts bring us together in a way that feels like a family reunion, surrounded by others who understand and appreciate the same rhythms, lyrics, and atmosphere.
The Obstacles of Accessibility
If you’ve ever been to a concert as a wheelchair user, you know the struggle is real. Often, the accessible seating is tucked away in the upper tiers or the back, making visibility a constant battle. Watching everyone around me stand up can be disheartening, especially when I can’t just pop out of my wheelchair to see the stage.
I’ve found that the best way to get around this is to buy tickets as close to the front as possible. Sometimes, that means risking a general admission (GA) standing pit. Yes, it requires arriving hours early and enduring a sea of inebriated fans, but the payoff is unmatched. I only attend GA pits with people I deeply trust—my personal bodyguards—who will shield me from stray elbows and flailing arms. For me, motivation to see my favorite artists up close outweighs the risks and challenges.
Making the Most of Each Concert
Here are a few tips that have helped me:
- Call Ahead: Always contact the venue or ticket provider to clarify their accessibility policies.
- Arrive Early: Good spots often go to those who get there first.
- Bring a Friend You Trust: Having someone who understands your needs is vital for a safe and enjoyable night.
- Pack Essentials: Whether it’s medication for bone pain or earplugs (for when you’re right next to the speakers), come prepared.
Despite the hurdles, I always walk (or roll) away from a show with incredible memories. There’s a certain motivation in facing these obstacles head-on and conquering them—one concert at a time.
The Need for Better Accommodation
While some venues are truly considerate, many still don’t provide adequate accessibility. It’s disappointing to shell out money for a ticket and then struggle to see the stage because of poor sightlines or no accessible seating up front. Sometimes, venue staff won’t—or can’t—make exceptions, and that’s where advocacy comes in.
I firmly believe that if we make our voices heard, more venues will realize the importance of catering to disabled concertgoers. It’s not just about following the Americans with Disabilities Act; it’s about creating an environment where everyone—regardless of ability—can share in the electric atmosphere of live music.
Finding Motivation Through Music
Living with Brittle Bone Disease means facing constant pain and physical limitations, but the energy from a concert is like a fuel injection for my spirit. Hearing a favorite lyric or connecting with an artist during a live performance is a reminder of what makes life exciting and meaningful.
So yes, I might have to plan, arrive early, and endure awkward stares or “helpful” suggestions. But when the lights dim, and the opening chords blast through the speakers, I’m just another music lover in the crowd, singing at the top of my lungs and letting the music carry me through every challenge life throws my way.