As a disabled artist living with Osteogenesis Imperfecta (OI), also known as Brittle Bone Disease, traveling can be both an adventure and a challenge. My recent trip to Maine was a mix of breathtaking scenery and the inevitable complications that come with flying with a wheelchair.
Planning the Trip: A Dream Destination
When the opportunity arose to plan a trip anywhere in the U.S., my mom and I chose Maine. From securing airline tickets to arranging an expensive handicap-accessible rental van, planning such a trip with specialized needs requires extra effort. Fortunately, our friends planned most of our daily activities, leaving me to focus on my one request: eating lobster every day. Spoiler alert—I succeeded!
The Challenges of Flying with a Wheelchair
Flying with a highly specialized, $75,000 wheelchair is never straightforward. Because there’s no space for it in the cabin, it must be stored in the cargo hold. This is a process that can lead to significant damage if not handled correctly. Here’s how the process typically unfolds:
Unloading the Chair: On the return trip, my wheelchair was damaged during the flight. The footplate was misaligned, the taillight was missing, and several structural components were broken. While it was still drivable, the repairs were costly.
Security Screening: My 400-pound wheelchair cannot go through standard metal detectors. I undergo a manual pat-down while my chair is chemically tested. It’s usually smooth, but on this trip, a grumpy security officer caused unnecessary delays, resulting in us missing our flight by just 45 seconds.
Gate Checking: Before boarding, I provide written instructions to the baggage handlers about the chair. Despite this, the instructions are often ignored.
The Hidden Costs of Disability and Travel
People often don’t realize the true costs of traveling with a disability. From specialized equipment to accessible transportation, the expenses add up quickly. Thankfully, Delta Airlines handled the repair process well, approving parts and repairs swiftly. The total claim for damages will likely be in the thousands. I’m hopeful the wheelchair will soon be restored to its original state.
Finding Motivation Amid the Challenges
Despite the travel difficulties, the trip itself was unforgettable. Maine’s natural beauty, cooler temperatures, and blossoming art community provided a much-needed escape. I spent quality time with friends, indulged in Maine’s culinary delights, and explored botanical gardens that left me inspired.
For me, experiences like these fuel my creativity and remind me of the resilience required to navigate life with a disability. Each challenge is an opportunity to advocate for myself and others in the art and disability community.
Looking Ahead
Maine was everything I had hoped for and more, and I’m already looking forward to returning—perhaps in the summer when travel might be a bit smoother! Traveling as a disabled artist comes with its hurdles, but the joy of experiencing new places and connecting with inspiring people far outweighs the challenges.