As a disabled artist living with Osteogenesis Imperfecta (brittle bone disease), my daily life often looks different from what most people expect. For me, lying flat on hard surfaces—like my kitchen table or counter—is not only functional but also essential for my comfort and productivity. This unconventional choice surprises many, but it’s what allows me to paint, type, and […]
Living with Osteogenesis Imperfecta (brittle bone disease) comes with unique challenges, one of which is finding a reliable aide to assist with daily tasks and support my creative endeavors as a watercolor artist. While you might assume that finding help would be easy, the reality is far more complex. What It Takes to Be an Aide for a […]
Living with Osteogenesis Imperfecta (OI), or brittle bone disease, means navigating unique challenges daily. As a disabled artist and watercolor enthusiast, my health directly impacts my ability to create art and live a fulfilling life. Dieting, exercise, and self-care play a crucial role in maintaining my physical well-being, but let’s be honest—dieting is no fun! The Struggle is Real: […]
Let’s talk about fashion and functionality—a real challenge for many of us with Osteogenesis Imperfecta (OI), also known as brittle bone disease. As a disabled artist, my body has unique proportions and limitations, which means finding clothing that fits, feels comfortable, and reflects my personal style can be a daunting task. While many of us living with bone disease know the […]
Living with Osteogenesis Imperfecta (OI) means constantly adapting to everyday activities that others might take for granted. As a disabled artist and advocate for art and disability, I’ve learned to find creative solutions for challenges posed by my condition. Today, I want to share how I navigate long car rides safely and comfortably—a process that’s both unconventional and deeply personal. […]
Living with Osteogenesis Imperfecta—also known as Brittle Bone Disease—means doing everyday tasks in ways that might seem unusual to others. One of the most common concerns people express about me is the way I eat: lying down on my side. Yet, after nearly 29 years of eating this way without incident, I’d say my track record speaks […]
Living with Osteogenesis Imperfecta (OI)—commonly known as Brittle Bone Disease—has shaped my life in countless ways, but it has never defined my potential. From a young age, my parents instilled in me a drive to push past limitations and contribute meaningfully to the world. This mindset has been a cornerstone of my journey as a disabled artist, helping me transform obstacles into […]
As a watercolor artist and lifelong animal lover, my inspiration often comes from the four-legged companions who share my life. My dogs are more than pets—they’re family, motivation, and constant sources of laughter. Growing up with veterinarians as parents meant that animals have always been an integral part of my life. Today, I’d like to introduce you to […]
Living with Osteogenesis Imperfecta (OI), or brittle bone disease, means navigating a world where broken bones are frequent and pain is a constant companion. By the time I was ten, I had experienced over 500 fractures. Despite that staggering number, I’ve managed to avoid regular use of narcotics—a choice rooted in my desire for long-term health and […]
This is a question I get asked all the time. The short answer is no. In fact, I rarely visit the hospital for a broken bone. Growing up with Brittle Bone Disease has taught me a lot about managing fractures without the need for emergency room trips. Why I Don’t Go to the Hospital A Family […]
