One of the most common therapies for people with Osteogenesis Imperfecta is rodding, or surgical procedures where metal rods are inserted inside the long bones for strength. One of the major issues people with OI have is that their long bones (arms and legs) develop abnormally and are often bowed. When they don’t grow straight, […]
As this year comes to a close (yes, it’s already November), I realize that it’s time to update my bucket list/life goals. I’ve been lucky enough to check several items off in the last couple years, and there are new ones to add. I figure since my 30th birthday is fast approaching, now is the […]
Any of you Facebookers know that there is a Facebook group for everything, and Osteogensis Imperfecta is no different. There are several out there, some for the different types, some with a focus on fitness, some with age restrictions, etc. I belong to several, and sometimes it’s nice to talk to people who go through […]
When people find out I use a wheelchair for mobility, the conversation following usually starts either one of two ways: Person #1: Oh, I’m so sorry you are confined to a wheelchair. It must be so hard not being able to walk. I can’t even imagine. You poor thing.” OR Person #2: “You are so […]
Most people with Osteogenesis Imperfecta take part in some type of regular physical therapy and/or exercise program. You may think that because we break bones easily we would not be able to do that, but in reality, PT helps our bodies keep moving. Certainly we have to be careful, but anything we can do to […]
Some believe in destiny and some believe in fate, but I believe that happiness is something we create. Something More, Sugarland In 2009, I talked my aunt into braving the heat and the crowds to see an up and coming band called Sugarland at Jazz Fest. The duo had a few songs out on the […]
I’ve seen variations on this question come up on several disability-related Facebook groups recently, and I find everyone’s responses interesting. Although it seems like a simple question at first glance, it’s actually fairly complicated once fully analyzed. I think it’s safe to say that most disabled people’s gut reaction when asked this is something along […]
Be courageous and be brave, and in my heart, you’ll always remain forever young. Sir Rod Stewart As many of you who follow my blogs and Facebook posts have seen, my friend, Christy, and I have had some pretty amazing experiences at concerts all over the country. We’ve had a private meet and greet with […]
I’m not one of those typical “I work best in a mess” artists. I have too much of my father’s left brain in me for that. When everything is everywhere, it makes me to anxious to work. I like organization – everything in its place where I can always find it. I like my workspace […]
As you can imagine, finding an effective way to exercise when you have limited mobility is tricky. It’s even harder when if you move certain ways or overwork your muscles, your bones break. Welcome to my world. My biggest problem is that my muscles are stronger than most of my bones, and so when they […]
