When people find out I use a wheelchair for mobility, the conversation following usually starts either one of two ways: Person #1: Oh, I’m so sorry you are confined to a wheelchair. It must be so hard not being able to walk. I can’t even imagine. You poor thing.” OR Person #2: “You are so […]
Most people with Osteogenesis Imperfecta take part in some type of regular physical therapy and/or exercise program. You may think that because we break bones easily we would not be able to do that, but in reality, PT helps our bodies keep moving. Certainly we have to be careful, but anything we can do to […]
I’ve seen variations on this question come up on several disability-related Facebook groups recently, and I find everyone’s responses interesting. Although it seems like a simple question at first glance, it’s actually fairly complicated once fully analyzed. I think it’s safe to say that most disabled people’s gut reaction when asked this is something along […]
As you can imagine, finding an effective way to exercise when you have limited mobility is tricky. It’s even harder when if you move certain ways or overwork your muscles, your bones break. Welcome to my world. My biggest problem is that my muscles are stronger than most of my bones, and so when they […]
The writing had been on the wall for a while that I would need a new van sooner rather than later. The trusty Toyota Sienna that I inherited from my dad when he passed away six years ago had a multitude developing minor issues. The sun roof leaked, so when it rained, water collected in […]
As most of you know, I spend a lot of my time lying down. It’s easier for me to function in that position because my back and neck get tired quickly in my chair, and when I’m lying on my side I feel like I’m not having to fight gravity as much. It can be […]
With as many people out there looking for a job as there are, you would think that finding an aide for me would be an easy task. Let me be the first to tell you, it’s not. The ads we place when searching for a new aide for me usually go something like this: “In […]
Let’s just get it out there: dieting sucks. Right ladies? I mean, what is better than a hot donut first thing in the morning, a big, juicy hamburger with a buttery bun and a soda for lunch, or fresh pecan pie with ice cream after dinner (maybe with a glass of port or sherry)? I’m […]
Alright ladies, time for some real talk. Guys, we are about to delve into the twisty but necessary world of undergarments, so you may just want to stop reading now. You’ve been warned. As you may suspect, finding clothes that are age-appropriate can be quite a challenge for me. I prefer not to wear shirts […]
I never understood this, but one of the most common fears people who aren’t familiar with the way I function have about me is that I will choke because I usually eat lying down on my side. I’ve been doing this for nearly 29 years at this point, and so far so good. I’d say […]
