Art has always been a refuge for me—a world where the limitations of my body are replaced by the limitless possibilities of creativity. Living with Osteogenesis Imperfecta (also known as Brittle Bone Disease), I often found myself unable to participate in activities many kids my age enjoyed. Sports like soccer or football were simply off the table, and […]
As you can see from my shirt, I love country music! It’s a passion I’ve carried with me since childhood. My journey into the world of country music wasn’t inspired by my parents but rather by two aides who cared for me when I was very young. When I was around three to five years […]
This week marks Osteogenesis Imperfecta Awareness Week—a great opportunity to share a glimpse into life with this rare condition and how it intertwines with my passion for watercolor art and wildlife painting. Living with Osteogenesis Imperfecta (OI), often called Brittle Bone Disease, has shaped my perspective and inspired my creativity in unique ways. Let’s dive into what OI is, how it impacts […]
Art and watercolor painting has always been a profound part of my life, offering both creative expression and personal growth. Living with Osteogenesis Imperfecta (OI), also known as brittle bones, has presented unique challenges—but it’s also given me a distinctive perspective that defines my art. Let me take you behind the scenes of my creative journey and share […]
As a disabled artist living with Osteogenesis Imperfecta (OI), also known as Brittle Bone Disease, I’ve discovered that art and music have the unique ability to uplift, inspire, and bring people together. While my personal passion lies in creating art, I also have a deep love for live music. For me, live music isn’t just about the songs—it’s about the […]
As someone living with Osteogenesis Imperfecta (OI), often called “brittle bone disease,” I’ve always found strength in creativity and compassion. Growing up in a household with two veterinarian parents, I was surrounded by pets and animals of all kinds. From our spunky Maltese named Teddy to our mischievous cockatiel, Charlie, and even our cool, collected tarantula named […]
Living with Osteogenesis Imperfecta (OI), also known as Brittle Bone Disease, means navigating life with unique challenges. One of the more peculiar ones? The stare. Whether it’s my compact stature or the impressive presence of my 400-pound wheelchair, people tend to notice me. While curiosity isn’t inherently bad, it’s the reactions that make things interesting. Kids are […]
Life doesn’t always go as planned, but sometimes, plan B can lead to incredible opportunities. Growing up with Osteogenesis Imperfecta (OI)—commonly known as Brittle Bone Disease—meant I had to adapt my dreams early on. My childhood dream of becoming a killer whale trainer (thanks to Free Willy) wasn’t in the cards, so I turned to something else I […]
One of the most common treatments for individuals with Osteogenesis Imperfecta (OI), also known as brittle bone disease, is rodding surgery. This procedure involves inserting metal rods into the long bones to strengthen them and reduce the frequency of fractures. For those living with OI, a major challenge is that their bones develop abnormally. This results in bowed limbs […]
Living with Osteogenesis Imperfecta (OI), commonly known as Brittle Bone Disease, comes with a unique set of challenges, and sometimes specialized therapies like Craniosacral Therapy is needed. For those of us with this rare condition, maintaining mobility and managing pain are top priorities. Despite the risks of bone fractures, physical therapy and regular exercise can play a critical […]
