Taking the Plunge: Inside Painting with OI

When I was in grade school and high school, I had an art teacher who emphasized the importance of learning the fundamentals of art while also developing your own style and artistic process. Robin didn’t necessarily spark a lot of creative desire in me, but she taught me many invaluable lessons that have allowed me […]

The Rodding Process

One of the most common therapies for people with Osteogenesis Imperfecta is rodding, or surgical procedures where metal rods are inserted inside the long bones for strength. One of the major issues people with OI have is that their long bones (arms and legs) develop abnormally and are often bowed. When they don’t grow straight, […]

KAK ART Parties and 2018 Wrap-Up

As many of you know, one of the ways I share my art and jewelry is through intimate at-home parties. KAK ART Parties were born in my grandparents’ house in New Iberia about ten years ago with a group of their closest friends. My first party in New Iberia was so well received that it […]
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Does Your Disability Define You?

I’ve seen variations on this question come up on several disability-related Facebook groups recently, and I find everyone’s responses interesting. Although it seems like a simple question at first glance, it’s actually fairly complicated once fully analyzed. I think it’s safe to say that most disabled people’s gut reaction when asked this is something along […]

Working with Rod

Be courageous and be brave, and in my heart, you’ll always remain forever young. Sir Rod Stewart As many of you who follow my blogs and Facebook posts have seen, my friend, Christy, and I have had some pretty amazing experiences at concerts all over the country. We’ve had a private meet and greet with […]

Getting My New Car

The writing had been on the wall for a while that I would need a new van sooner rather than later. The trusty Toyota Sienna that I inherited from my dad when he passed away six years ago had a multitude developing minor issues. The sun roof leaked, so when it rained, water collected in […]