Living with Osteogenesis Imperfecta (OI)—also known as Brittle Bone Disease—comes with unique challenges, particularly for those of us with short limbs, limited mobility, and fragile bones. Over time, adaptive technologies have made navigating these challenges more manageable. Here are ten game-changing gadgets that have made a difference for me and others in the disabled community. 1. Electric Wheelchairs […]
Anyone who knows me will tell you that my idea of a perfect evening involves music, a live concert, and getting as close to the stage as possible. Even though I’m a disabled artist living with Osteogenesis Imperfecta (OI)—often referred to as Brittle Bone Disease—music has always been my escape, my happy place. And let’s face it, painting (though I love it) […]
When I share that I have Osteogenesis Imperfecta (OI), often called Brittle Bone Disease, people are surprised to learn I attended mainstream schools my entire life. As a disabled artist who thrived in these environments, I’ve seen firsthand how school inclusion benefits not just the student with a disability, but the entire community. Early Challenges and the Search for Inclusion By […]
Living with Osteogenesis Imperfecta—often called Brittle Bone Disease—comes with daily challenges, especially when it comes to managing simple tasks. As a disabled artist navigating the realities of art and disability, I’ve discovered that a well-trained service dog can make all the difference. Meet Lexie, my 7-ish-year-old Sheltie/Border Collie mix who transformed from a rambunctious rescue into a skilled service dog—and […]
When you think of summer vacation, the beach likely springs to mind—sun, surf, and sand appeal to most people. Families build sandcastles, dogs romp in the waves, and adults lounge under umbrellas with a cold drink. It’s a near-perfect getaway for many—but not for me! As a disabled artist living with Osteogenesis Imperfecta (also known as Brittle Bone Disease), I face unique […]
Living with Osteogenesis Imperfecta (OI), commonly referred to as Brittle Bone Disease, means constantly navigating physical limitations, chronic pain, and the need to rely on others for everyday tasks. As a disabled artist, I’ve come to realize that art and dependence intersect in countless ways—some more challenging than others. Whether you’ve lived with a disability all your life or suddenly find […]
As a disabled artist living with Osteogenesis Imperfecta (OI)—also known as Brittle Bone Disease—I’ve encountered my fair share of awkward interactions. While most people mean well, some just don’t know how to act around a wheelchair user. Over the years, I’ve collected a handful of helpful etiquette tips that can make everyday encounters more respectful, comfortable, and enlightening for […]
Today on Looking Up, I’d like to introduce you to a TRUE entrepreneur, Jane Hash, who just so happens to have Osteogenesis Imperfecta Type III like me. An activist, business owner, volunteer, podcaster, nutritionist, and blogger herself, Jane has truly done it all. Let’s get started! Hey Jane! First, I want to start off with […]
As an artist living with Osteogenesis Imperfecta (often called Brittle Bone Disease), people often suggest I could make a fortune if I focused on painting full-time. While I’m deeply passionate about art, the reality is more complex—and it’s shaped by both my disability and my personal preferences. 1. The Myth of the “Starving Artist” Many believe a full-time painter can easily make a […]
When you live with Osteogenesis Imperfecta finding activities that fuel creativity and keep boredom at bay can be life-changing. I’ve always gravitated toward any outlet that allows me to express myself and nurture my love for animals. I want to show the world that my disability doesn’t define my limits. From a young age, art became my passion. Over time, […]
