As someone living with Osteogenesis Imperfecta (OI), often called “brittle bone disease,” I’ve always found strength in creativity and compassion. Growing up in a household with two veterinarian parents, I was surrounded by pets and animals of all kinds. From our spunky Maltese named Teddy to our mischievous cockatiel, Charlie, and even our cool, collected tarantula named […]
As a disabled artist and graphic designer, I’ve learned that opportunities can come from the most unexpected places. A chance encounter with Rod Stewart at the New Orleans Jazz Fest became a once-in-a-lifetime experience that not only challenged my creativity but also reinforced my belief in the power of hard work, resilience, and seizing the moment. How I […]
Living with Osteogenesis Imperfecta (OI), also known as Brittle Bone Disease, means navigating life with unique challenges. One of the more peculiar ones? The stare. Whether it’s my compact stature or the impressive presence of my 400-pound wheelchair, people tend to notice me. While curiosity isn’t inherently bad, it’s the reactions that make things interesting. Kids are […]
Life doesn’t always go as planned, but sometimes, plan B can lead to incredible opportunities. Growing up with Osteogenesis Imperfecta (OI)—commonly known as Brittle Bone Disease—meant I had to adapt my dreams early on. My childhood dream of becoming a killer whale trainer (thanks to Free Willy) wasn’t in the cards, so I turned to something else I […]
Living with Osteogenesis Imperfecta (OI)—commonly known as Brittle Bone Disease—comes with unique challenges, particularly when it comes to mobility. As a disabled artist whose work and lifestyle depend on accessibility, having the right wheelchair is not just a convenience but a necessity. However, the process of acquiring a new wheelchair is anything but straightforward, as I recently experienced once […]
As a disabled artist passionate about art and disability, I’m excited to share a project that combines my love for painting with my admiration for our furry companions. Over the past few months, I’ve been working behind the scenes on something truly special, and today, I’m thrilled to unveil it. Drumroll, please… Introducing “Breed All About Us”! What […]
Some of the best advice I’ve ever received is simple: “You gotta use what you got, kid.” This wisdom has been crucial in my journey as a disabled artist living with Osteogenesis Imperfecta (OI)—a chronic disease that impacts my life every day, yet also shapes my art and my approach to life. Sometimes it’s a challenge to find motivation. […]
One of the most common questions I get asked as a disabled artist living with Osteogenesis Imperfecta (OI)—also known as brittle bone disease—is, “How do you manage to find motivation when your life is full of physical pain and challenges?” The truth is, there are several reasons why I maintain a positive attitude despite the daily struggles that come with […]
One of the most common treatments for individuals with Osteogenesis Imperfecta (OI), also known as brittle bone disease, is rodding surgery. This procedure involves inserting metal rods into the long bones to strengthen them and reduce the frequency of fractures. For those living with OI, a major challenge is that their bones develop abnormally. This results in bowed limbs […]
As a watercolor artist and a disabled artist, one of my most beloved ways of sharing my art is through intimate at-home events, known as KAK ART Parties. These gatherings began about ten years ago at my grandparents’ home in New Iberia, where I showcased my work to a small group of close friends. The event was such a […]
