For those of you who follow me on social media, you might have noticed that I have not been painting nearly as much as I normally do in the last couple of months. I’ve been working on a new painting project and chose to keep it under wraps until a certain amount of it was […]
Some of the best advice I’ve ever received is “You gotta use what you got, kid.” When you have a disability and your job requires you to effectively market yourself, it’s tricky to find the balance of just how much it should play a role in your marketing strategy. While it’s true that I have […]
One of the most common questions I get asked is “How do you manage to have such a positive attitude when your life is so hard and full of so much physical pain?” Well, there’s a few reasons. The first is that I was raised not to feel sorry for myself. My mother in particular […]
As some of you know, I’m a huge Ellen Degeneres fan. Not only are we both from the same city, but we are both avid animal lovers. It is literally one of my ultimate life goals to meet her one day and work with her on a project or two. Ellen has the reputation as […]
One of the most common therapies for people with Osteogenesis Imperfecta is rodding, or surgical procedures where metal rods are inserted inside the long bones for strength. One of the major issues people with OI have is that their long bones (arms and legs) develop abnormally and are often bowed. When they don’t grow straight, […]
As many of you know, one of the ways I share my art and jewelry is through intimate at-home parties. KAK ART Parties were born in my grandparents’ house in New Iberia about ten years ago with a group of their closest friends. My first party in New Iberia was so well received that it […]
As this year comes to a close (yes, it’s already November), I realize that it’s time to update my bucket list/life goals. I’ve been lucky enough to check several items off in the last couple years, and there are new ones to add. I figure since my 30th birthday is fast approaching, now is the […]
Any of you Facebookers know that there is a Facebook group for everything, and Osteogensis Imperfecta is no different. There are several out there, some for the different types, some with a focus on fitness, some with age restrictions, etc. I belong to several, and sometimes it’s nice to talk to people who go through […]
When people find out I use a wheelchair for mobility, the conversation following usually starts either one of two ways: Person #1: Oh, I’m so sorry you are confined to a wheelchair. It must be so hard not being able to walk. I can’t even imagine. You poor thing.” OR Person #2: “You are so […]
Most people with Osteogenesis Imperfecta take part in some type of regular physical therapy and/or exercise program. You may think that because we break bones easily we would not be able to do that, but in reality, PT helps our bodies keep moving. Certainly we have to be careful, but anything we can do to […]
